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Cystic Fibrosis Center

Cystic Fibrosis Center
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FAQs & resources

FAQs

What can I expect on my clinic visit?

After you check in, a nurse will check your height, weight, and vital signs and place you in a private room. You or your child (if old enough) will be asked to perform a pulmonary function test. This will be followed by assessments with Cystic Fibrosis (CF) team members.

How long will my clinic visit take?

CF clinic visits are longer than your usual physician visits as you are seen by members of the multi-disciplinary care team. Please allow 2-4 hours for each visit.

Who/what number can I call for after-hours questions or emergencies?

If you are sick and need urgent medical attention, please go to your nearest urgent care or emergency room. After you have been seen by a physician, please request that the physician contact the on-call Pulmonologist at Kaiser Permanente Los Angeles Medical Center.

Can I fill a (new) prescription after hours?

Yes, you can fill a new prescription after hours through your local KP pharmacy or your local 24-hour KP pharmacy. Please visit kp.org and click on “Locate our services.” However, some CF medications are NOT stocked by all KP pharmacies and will not be available for pick up immediately.

Is there a lab or pharmacy on site?

Yes, in Pediatric CF clinic (4700 Sunset Blvd.), the lab and pharmacy are located on the 1st floor. In Adult CF clinic (1515 N. Vermont Ave.), the lab and pharmacy are located on the 2nd floor.

Do I have to see the social worker or dietitian at every visit?

Our patients with CF must be evaluated by our social worker and dietitian at least once a year. Our patients are seen by our social worker and dietitian during clinic visits based on assessment and patient needs.

Where can I find out more about Cystic Fibrosis?

The Cystic Fibrosis Foundation is the best place to start to get to know more about CF. You can find them at www.cff.org.

Also available is PORT CF, where families, patients, and medical providers can see all data collected from the Cystic Fibrosis Centers, nationally. Please visit here to create an account.

Where can I find out about research in the field of Cystic Fibrosis?

The world of Cystic Fibrosis research is an ever changing landscape and the best place to find out about the latest updates is on the Cystic Fibrosis Foundation website (www.cff.org) under the “Our Research” heading.

How can my family or I become more involved in the CF clinic?

One way to work with the CF Center team and to share your voice would be through participating in the center’s Patient Family Advisory Board. This group meets 4 times a year with the care team to address improvement projects, change ideas, and to allow patients and families to work along with staff to better the center. If interested, please contact the CF Social Worker at 323-783-8815 and complete the application.

Patient Assistance Program/Forms